Tuesday, January 31, 2012

Hospice Care

A personal flashback to hospice care and the support experienced by our family during the loss our mother, our best friend.

By Carolyn Roberson - Friday 02 Sep 2011
Hospice care

In 2005, my mother slid into the floor at church during the Maundy Thursday service. One would recognize this as unusual right off; however, my mother, having grown up in a Holiness church, had very unique worship practices. My sister, who was with her, thought maybe she was having some kind of spiritual experience until she realized she had passed out.

After arriving at the hospital via ambulance, totally petrified at having disrupted the solemn service at church, mother was back to her usual eccentric self. Apologizing to the preacher when he visited, he assured her it was fine, and everyone understood it was a medical emergency. She felt only slightly better for the disruption.

Diagnosed with Autoimmune Hepatitis, mother was given the news that she had about 24 months to live, and was not a candidate for a liver transplant due to various health issues, and age. She immediately heard terminal, and sat down to die. It was very difficult watching this woman who road a sea doo and snowmobiles, who could run your socks off, work circles around you, and was just a social butterfly become disinterested in life. She turned inward, and her outgoing personality was missed.

Doctors visits were almost daily, and even on the best days, she was tired all the time. One of the last Sundays she attended church left her in the bushes and rolling down the little inclined sidewalk into the street where a car stopped short of hitting her because of a missed step. Much to her dismay, the day she turned in her driver’s license, and got a non-driver I.D. was an emotionally traumatic time for her.

Because her two Blue Cross/Blue Shield policies and her Medicare failed to pay for the prescription of oxygen from the doctor, her home health doctor mentioned that a hospice would pay for oxygen, and provide help to the family with drug administration, and basic personal care. We tried to reassure her that, although she was terminal, hospice intervention was just a route to go for less expense with her medications and such. She didn’t buy it, and it made her quit all together.

Hospice care, once the right people were in place, became a lifesaver, not only for the family, but also for mother. She could interact with someone new, whereas conversations became routine and boring with just the family members. Although it was a health care visit, Miss Butterfly used it as a time for socialization.

At the end, hospice care became a support system for the family members, aiding us in coping with the upcoming loss. The elderly night nurse was grandmotherly, and emotionally supported each of us as we were coming to the point of encouraging mother to let go, and where we could say goodbye. Each nurse was as interactive as we needed, or quiet during our moments of silence; instinctually interactive as each of the family members were experiencing different emotions at different times.

Hospice nursing isn’t for everyone: I am sure of that. It takes someone truly special to accomplish all that they did for our dying mother, and each member of our family. To be there at the time life leaves the body at death is as special as being there for the birth of new life. I will always be thankful to Vitas Hospice Care, San Antonio, Texas.

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